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this post was submitted on 05 Jun 2024
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I'm getting tested for autism as an adult next week. If it turns out I am, who do I contact from the Autistic community? Or does a representative contact me? I don't want to mess this up and I have a costume ready and everything.
Can you tell me your secret? I've been waiting 8 years for an adult diagnosis. It doesn't really matter in the sense that I know I'm some flavour of ND, though. And I work in education, and people around me have been pretty accepting.
Apparently you haven’t been vaccinated enough. Double up on your shots and you’ll make it fir sure
I’ve got an appointment in a few months. No idea if you’re in the US but, if so, the secret is the same as everything in American health care - money, debt or navigating insane bureaucracy to get insurance to cover it. And, in my case, also traveling a long way to a place that does adult evaluations and scheduling the appointment nearly a year in advance.
Secret? I don't even know if I am neurodivergent, I am getting tested to figure it out, I have taken a dozen online tests of various efficacy and they all come up "borderline" so I am getting a professional diagnosis. It may also be a very strong case of CPTSD mimicking the effects of autism and/or ADHD.
Otherwise, I have been struggling my whole life with things that should be a lot easier for me, and if I DID have a secret, all my best successes and largest achievements have been a result of pushing myself out of my comfort zone and pushing into more challenges, not listening to my reasoning because my reasoning is flawed, our brains just tell stories to explain how we feel and those stories don't necessarily have to make sense, it's just stories to make you feel like the world makes sense. It doesn't.
Understanding nuance of people's feelings and emotions was always hard for me, so I pushed myself to lead more, to be a team leader or a project leader, and put an emphasis on instead of retreating from giving everyone personal attention, I leaned in harder always and have always made a policy to listen and genuinely be compassionate to others and exercise empathy.
I also pushed myself to do more public speaking and leading lectures, MC'ing social events, and giving speeches when appropriate.
In my last job I was afraid of failure because I have been laid off so many times in the past, so I paid careful attention to that worry about messing up, and every time I had that worry I did the exact opposite of what my gut was telling me. I got laid off from that job as well anyway, because that's how business is now, but not before becoming a general manager and well-liked by hundreds of people.
The number of times I've put myself in trouble by resisting the "Safe" route is not insignificant, but each of those times has been easily navigated and more than rewarded by the successes which were a result of speaking up when I would normally keep quiet.
So your secret should be to value yourself. Even if you don't feel it, act like it. Pretend you are valuable and important and people will treat you like you're valuable and important.
This is a great comment but I think by "secret" they meant in terms of getting an appointment for a diagnosis, since they've been unsuccessfully trying to get one for a while.
Gotcha, remains to be seen... doctor hasn't been very affirmative with me about what exactly we're doing next week, I assumed from his language it would be a diagnosis/test but they say frequently it's all "more complicated" than we tend to think, so the reason some people might have a hard time getting a diagnosis is because particularly as you get older a lot of conditions and symptoms kind of blend together and make certainty much, much harder, and it is sometimes more efficient to just focus on managing the symptoms no matter what the underlying cause may be.
I guess I'll find out and try to update others as I go through the process.
The fact that you have a shred of humor in your system means you aren't autistic.
Uh...autistic people can absolutely be funny. Like this funny ass mother fucker https://www.youtube.com/watch?v=k82dywiOjFE
Watched the entirety with my autistic son and we both laughed our asses off. Thanks for that.
😆
I tried to think of a witty response to your funny joke but I'm apparently too tired for that, so instead, I'll wish you good luck for next week, and the weeks that follow it; getting a diagnosis as an adult is often cathartic in the short term, liberatory in the long term, and in between those points is a long period of introspective untangling a web of messy feelings and possibly internalised ableism. I wish you the strength to endure and to emerge with a better understanding of who you are, regardless of the outcome of the assessment.
Kindest words anyone has shared with me since I can remember. Thank you.
Jesus fuck, you need kinder people in your life. I hope you find affection at every level of your needs. Proud of you for seeking growth and self awareness. I have high hopes for you and best wishes.
Anthony Hopkins will get in touch with you about filing all the paperwork.