this post was submitted on 11 Jul 2024
902 points (98.7% liked)

memes

9696 readers
3406 users here now

Community rules

1. Be civilNo trolling, bigotry or other insulting / annoying behaviour

2. No politicsThis is non-politics community. For political memes please go to [email protected]

3. No recent repostsCheck for reposts when posting a meme, you can only repost after 1 month

4. No botsNo bots without the express approval of the mods or the admins

5. No Spam/AdsNo advertisements or spam. This is an instance rule and the only way to live.

Sister communities

founded 1 year ago
MODERATORS
 
top 50 comments
sorted by: hot top controversial new old
[–] [email protected] 5 points 2 months ago

My dad. :( It's sad to watch knowing you can't do anything.

[–] [email protected] 22 points 2 months ago* (last edited 2 months ago) (2 children)

Chronic Chest pains here and heart rate issues.

Every day, multiple times a day, I clutch my chest and gasp for breath/double over.

Its become such a common occurence I dont even have the "OH MY GOD IS THIS IT" response anymore.

I usually just angrily scream "god DAMNIT" through gritted teeth as my heart rate goes through the roof for the next 10 minutes to 7 hours.

Took me laying in the ER hooked up to a heart monitor and having one infront of a nurse that I was even remotely taken seriously, and even then it was just a "uh huh, uh huh, uh huh, okay take these beta blockers, bye "

when i asked what it was, they just shruged and said "its normal, weird you act like it hurts so much, but oh well"

20+ years later, i still got it, and it gets worse every passing year. yet i'm in perfect health according to the doctors and tests

[–] [email protected] 5 points 2 months ago (1 children)

Panic attacks? Too much caffeine? This happens to me when I’m going to sleep, it’s really frightening. If you have any insight let me know.

[–] [email protected] 5 points 2 months ago* (last edited 2 months ago) (2 children)

They wanted to insist it was panic attacks for a long time, but that kinda died off after they tried twice to give me a big ol' dose of ativan with absolutely zero effect (Other than me experiencing a moment of pure, drug induced happiness, of course)

They tried to blame caffeine, too. Telling them I hadnt had caffeine in 10 years visibly took the wind out of the sails on that, too.

Current theories are that I somehow accidentally offended some elder god, or that I earned a witches ire in a past life

[–] [email protected] 1 points 2 months ago

The ancient gods are vengeful.

[–] [email protected] 3 points 2 months ago (2 children)

Since everybody is guessing, let me throw my hat into the ring.

Pheochromocytoma

[–] [email protected] 1 points 2 months ago
[–] [email protected] 1 points 2 months ago* (last edited 2 months ago)

Oh.

Thats.. Thats just what i needed today.

😱

edit

I have tachy, headaches, heat intolerance, nausea, Dizziness from getting up to fast, tremors and more.

Today is fun

[–] [email protected] 2 points 2 months ago

That doesn't seem right. Sorry you have to deal with that.

[–] [email protected] 6 points 2 months ago

Right there with you, my friend.

[–] [email protected] 19 points 2 months ago (1 children)

Yup! Ehlers Danlos Syndrome is a BITCH. I was diagnosed in 2014 and I wish I could go back in time and scream at younger Shelby to quit gymnastics, quit cheerleading, and quit my job as a contortionist... on the outside, I look healthy and even do boudoir for a living, but my doctor says my ligaments are similar to someone in their late seventies. It's hard when you look "normal" because everyone assumes you're faking it.

[–] [email protected] 4 points 2 months ago (1 children)

I suspect that I have Ehlers Danols. I have an appointment with a new doctor next month to look into a possible diagnosis. When my wife first found out about EDS and said she thought I might have it I was just like "whatever", but then the more we looked into it the more my entire life made sense. I'm not saying I hope I have EDS but it would be really nice to actually have an explanation for the constant pain and unstable joints.

[–] [email protected] 1 points 2 months ago (1 children)

You're in luck! I volunteer as a Disability advocate for EDS and Rising Voices of Narcolepsy.There's a test for EDS called the Beighton Scale. If you have all 9, it's a guarantee for the hypermobile type of it called hEDS. Even if you've got 5-6 on the scale, you probably have it. 9 is the worst, what I have. I've needed multiple surgeries and was designated as fully disabled by a judge in my early 20s.

Having answers brings peace of mind, but what's even more important is that your treatments will change. People with Ehlers Danlos Syndrome ABSOLUTELY CANNOT use the antibiotics in the Cipro family. It causes vein collapse, circulatory system leakage, and aortic aneurysms. It can kill you. You also can't do most stretches, so Yoga is a no go and physical therapy can only focus on strengthening your injured areas.

Here's the test. Hope it helps!

https://www.ehlers-danlos.com/assessing-joint-hypermobility/

[–] [email protected] 1 points 2 months ago (1 children)

Thanks for the info. The Brighton test is actually what led us to start looking into EDS. I easily get 4 points with the pinkies and thumbs. I'm not sure on the knees and elbows, I go past straight but I didn't know how to properly measure what angle I get to. I cannot even come close to touching my toes because my spine does not curve the way it is supposed to.

I did not know about the antibiotic, that is good info to have. I did know people with EDS need to be particularly careful with stretches and yoga but had not really thought about physical therapy. Last time I was in PT for my spine I ripped my collar bone most of the way off of my sternum so that makes sense.

Again, thank you for the info.

[–] [email protected] 1 points 2 months ago

Ouch! I'm so sorry!

For the bending backwards scale on the knees and elbows, anything past 180° counts. My knees and elbows curve back pretty far. The more severe the degree, the more severe the EDS, normally. Also, get checked for Cardiac EDS. It's the most deadly. It's basically EDS for veins and arteries. EDS also leads to the conditions where POTS forms and that's its own can of worms

[–] [email protected] 6 points 2 months ago

I don't have chronic pain but this is my cycle of depression

[–] [email protected] 5 points 2 months ago* (last edited 2 months ago)

Twisted a vertebrae and broke a collarbone here.

I get that cramping feeling you get in your neck when you run in crisp cold air and are filling your lungs completely and quickly because you are so out of breath but you are pushing yourself to just get up the hill and down the driveway so you can get home and slam the door behind you, lock the top dead bolt, lock the door knob, drag your prized armoire to block the door, it needs to be firm. Then take all your other furniture to baracade the back door, garage door, and the door to the garden. You desperately begin taking apart chairs and taking cubbards and doors off their hinges. You need any extra piece of wood to hammer into the wall to block the windows. You are panting and heaving, feeling nauseous from exhaustion, but you know stopping is not an option. You cannot slow down, you need to make the most of every second, he who hesitates is lost, but he who rests is dead. You keep thinking "10% faster, 10% faster, please God not like this, 10% faster". It's at that moment, when you feel that aching and pulling of your collarbone that you realize you were too late. The pit in your stomach filling like a water balloon, your throat tightening and eyes beginning to water. You were no longer keeping him out, you were now keeping him in. You knew he was faster, stronger, and more cleverer than you, but you had to at least try. Any glimpse of survival is extinguished, your fate was all but sealed long ago. It was always going to be this way, it was always going to be Shia LaBeouf.

Also it feels like someone stabbed me in the back from time to time. Thank God for weed.

[–] [email protected] 18 points 2 months ago

My life right here. Good god. I know I’m annoying and I hate it.

[–] [email protected] 17 points 2 months ago (1 children)

Incredibly accurate. I've had migraines since at least high school that have evolved into a migraine that hasn't stopped for a second for at least 4 years now. Most of the time I can soldier on, but I'm having an all caps night tonight.

[–] [email protected] 3 points 2 months ago

I’m so sorry. My wife has migraines and they’re terrible but they don’t last more than a week at most. I can’t imagine one lasting 4 years. I wish you happiness and relief friend.

[–] [email protected] 20 points 2 months ago (1 children)
[–] [email protected] 9 points 2 months ago

¿¡Por Qué No Los Dos!?

[–] [email protected] 35 points 2 months ago (1 children)

It has a large effect on mental health and depression, too. The pain becomes sort of like being trapped under a too heavy blanket or something, and you're always fighting with it. Good things feel less good because you're hurting, and bad things feel worse because you're hurting. Pain meds help a little, but it sort of numbs everything else along with the pain. The only time you can get a bit of respite is when you're sleeping, and you better hope nothing wakes you up because then you're laying in pain trying to go back to sleep for an hour. Awful.

[–] [email protected] 13 points 2 months ago (2 children)

I went and took maternity pictures with my wife yesterday and she was having so much fun. I didn’t complain because I didn’t want to ruin it, but I was so mad at myself because it was all I could focus on.

I’d forget for a second and make a joke to make her laugh and then right back into focusing on the pain.

I’m about burned out with it. I’ll have a good week followed by three months of nonstop misery. I can’t take pain meds because I’m a former addict. I’m terrified to have surgery for that reason.

I don’t know. Sorry to put this here. I wish I were better at suffering in silence. I know I’ve gotta be driving her crazy groaning all the time. I try not to, which makes me super aware of it. It sucks.

It is what it is and we get what we get, but damn I wish I could get some real relief. I’m feeling alright at this moment because I’ve had 4 12% alcohol beers, but when I wake up in the morning I’ll probably spend the first 5 hours of my day wishing I could just be unconscious.

[–] [email protected] 4 points 2 months ago* (last edited 2 months ago)

I appreciate that you shared it. It's nice to know I'm not alone in the challenges I face with pain. I'm sorry that you have to deal with that experience.

I like to think that we're stronger for having to go through stuff like that, but sometimes it just feels like suffering for no reason lol.

It'd be nice to not suffer from what I do, and therefore not have constant pain, but also that person wouldn't be me ig? Idk maybe that's stupid but I think all I can do to keep going is try to be as positive as I can be.

Sorry if I rambled here. I hope things get better for you somehow fr <3

[–] [email protected] 1 points 2 months ago

Damn dude, I feel for ya... that sucks. Is there any hope for a solution?

[–] [email protected] 7 points 2 months ago (1 children)

I'd just start doing heroin

[–] [email protected] 7 points 2 months ago

I got medical marihuana for my constant migraines. A sufficiant dose to be effective for the headaches made me high as a kite 24/7. No pause, no sobering up in between. No way to function as a human being any time of the day or week or month.

After trying around with several different strands, dosages, applications for months, I gave up and rather live with the pain. At least I can be myself sometimes.

Otherwise your suggestion is absolutely valid. There are plenty of chronic pain patients that become addicts to one thing or another because of that.

load more comments
view more: next ›