this post was submitted on 02 Mar 2024
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As someone with chronic idiopathic hyperemesis, this is a mood.
I vomit too often and for too long to find anything zen about it. I spend the entire time heaving anxiously worrying over the state of my tooth enamel and trying to remember if I ate beets or chocolate last night to explain that colour or if I need to call an ambulance.
I vomit while using my phone. I'll play a podcast, video, music, etc
If I'm going to be heaving for 20 minutes 2-4 times a day every day for a few months, I'm not doing it in silence with my own thoughts.
I've been dealing with this on and off for about 7 years now, twice a year I'll just have a 1-2 months straight where I can't keep anything down, not even water unless I'm vigilant about stretching out my water intake over a whole day one tiny sip at a time. Then just as suddenly as it starts, one day I'll wake up and I just magically won't feel nauseous, and it's like I was never even sick!
Because it goes away on its own I've never been able to get to the bottom of it. When it starts happening, I book in with a doctor, by the time I finally see the doctor, the "flare up" has passed and any tests the doctor runs when I'm not sick are always normal. So doctors will just blame my migraine disorder for it, and move on. I recently learned about Cyclic Vomiting Syndrome so that's something I'm going to be talking to my doctor about when I see him next.
Yeah, this part hits with me. Every single time I go to the doctor, the symptoms disappear, and I question whether I really need a doctor. Then they reappear again :-/
It's like the sickness is avoiding being detected or sth.. Like honestly, it stops the exact day of the appointment. And it's worst on friday evening and saturday, where there's definitely no impulse doctor visit. I'm being played.
That really sucks and I'm sorry to hear it. If you can call it lucky, I never actually vomit in that nothing ever comes out. It's always been dry heaving. I couldn't even imagine how hard it must be to not even be able to easily drink water. I really hope you find a solution soon and I highly recommend sending all of your medical records to the Mayo Clinic like I did (you can start by filling out a form on their website) if you think your insurance will cover it. The worst they can do is turn you down.
I find your situation just as sucky, sometimes I find dry heaving is worth because there is no end, at least if I'm bringing something up there is an end in sight.
Unfortunately and fortunately I'm not American, we don't really have anything like the Mayo clinic, but at least my doctors and specialist appointments have all been less than $500 out of pocket every time.
Sorry to hear that there is no specialist clinic for you, but I hope you find a solution soon!