this post was submitted on 08 Jan 2024
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Not to bring things down but... when you've been dealing with an undiagnosed illness which has gone on for months (i.e. me), you'll be happy to take someone with the bedside manner of Dr. House as long as you get some sort of answer.
And no, it isn't lupus.
Have you considered it's all in your head? /s
The funny thing is we actually considered some sort of brain issue, but according to my neurologist after seeing my MRI, I have a very healthy brain.
Of course, that doesn't mean I'm not imagining things. Who knows? Anything could be psychosomatic.
I'm sorry to hear it.
Things could be psychosomatic, but I was being sarcastic for a reason. Many people dismiss other's pain as psychosomatic as a quick way to ignore their needs. I say trust yourself as much as it makes sense to do so.
Actually, it's not a pain thing. I'm in no pain from it at all. It's just a mystery. I dry heave every morning like I have morning sickness (unlikely due to, like, having a penis) and I have been unable to eat solid food since August (I had another six-week bout in March). I live on Ensure and Gatorade. I have had a ton of tests- X-rays, labs, an MRI, a HIDA scan and two EGDs (where they send a scope down your throat). I have had a biopsy of my stomach. I have had my gallbladder removed. Nothing has changed. So I have an appointment at the Mayo Clinic for the end of March (unless someone cancels and I can get in sooner) where hopefully I'll meet my Doctor House and get this sorted out.
But there's no pain and very little discomfort. I feel fine most of the time. I can live a relatively normal life despite this, although obviously I have fairly low energy. I mean it sucks not eating, I'd love to eat. A new Nepalese restaurant opened here. I've never even had Nepalese food! I drive by it all the time and look at the pictures outside and think, "wow, I wish I could eat that." But I can't. It's not nausea, it's a total aversion to food. The smell, the texture, etc. And no hunger ever. My GP described it as similar to anorexia but with a physical cause. We just don't know what that cause is.
The only positive is that I've lost 70 pounds and am 10 pounds away from my ideal weight. I still look fat, but hey, we can't have everything. So I do recommend having a mystery illness where you can't eat if you want to lose weight. It works better than Ozempic!
Not to be too gross, but how’s your poo?
Have you had Covid (or Covid symptoms) shortly before this started happening? I think the new booster didn’t come out until September.
It is what you would expect from someone who has a diet low in fiber.
And I had COVID in between the bouts of not eating.
Also, no offense meant here, but I really do not want medical advice over the internet from people I don't know.