You should see an immunologist or rheumatologist. A lot of people with "Long COVID" have been being found to have undiagnosed or inactive autoimmune conditions that were only surfaced by these types of infections. You may be able to improve your quality of life by getting some things under control with medication.
Off My Chest
RULES:
I am looking for mods!
1. The "good" part of our community means we are pro-empathy and anti-harassment. However, we don't intend to make this a "safe space" where everyone has to be a saint. Sh*t happens, and life is messy. That's why we get things off our chests.
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3. Frustrated, venting, or angry posts are still welcome.
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5. If anyone offers mental, medical, or professional advice here, please remember to take it with a grain of salt. Seek out real professionals if needed.
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Please don’t give me medical advice. I know what I have. I have a multitude of non-autoimmune diseases triggered by COVID which fall under the umbrella term of long covid. I did not ask for advice. I just wanted to vent.
Some guy in a Fuck Trudeau shirt got on my bus the other day and started making shitty comments to me about wearing a mask. I had earbuds in so I just looked through him like he wasn't there, but it was scary. I'm so sorry OP. Did you get the first bout before vaccines?
3 times vaccinated :/. Just got shit genes I guess.
You poor thing, I'm so sorry.
This reminded me that Apple recently added a feature to iOS called Music Haptics that lets you feel the music on your iPhone. It's not the same of course but maybe it helps out a little.
Theres a thought. There are headphones that transfer music to vibrations that travel through the bones in your head as opposed to the ear canals. Might be worth looking into
Probably not if the deafness is caused by brain damage.
Likely not applicable if deafness is due to brain damage.
🙏
A week after the government lifted mask mandates here in South Africa the lady who usually helped me at the local pharmacy was dead. She was immunocompromised, and it took just a week of people huffing their breath on her for her to catch COVID and die. Just like that.
I wear my mask religiously whenever I walk into any building. No one is getting COVID because of my criminal negligence.
But it's not just that. I also wear my mask because I don't believe people should be allowed to simply forget COVID and all the shitfuckery about our society that it exposed.
Sorry, I know this rant doesn't help you in any way.
As the only person in my public-facing job to never stop masking, I feel you. Still get random aggression from strangers about it, but will just half-heartedly mention how lucky they are to have not lost anyone personally. Most people I know are missing some family since the pandemic.
Covid was an ugly part of the world. Music was a beautiful part of the world.
is there are beauty left?
It absolutely sucks that this happened to you, I would literary not wish your fate on anybody in the world. I won't use this to tell my own sob story, but have you tried getting into video games? Most have accessibility features. Get "Factorio" it basically runs on a potato and you will unironicaly forget what the sun looks like. Sound is not important either.
I'd wish it on COVID deniers who think anyone who caught it and didn't die is "fine". They absolutely deserve that fate.
Nah dog, as somebody who's experienced only a fraction of soul crushing loneliness and isolation, I wouldn't wish it on anybody. Nothing makes you feel less human.
Space Age is right around the corner. I'll emerge after winter.
Just in time for the Project Zomboid B42 update, and its back to the cave.
@[email protected] you need to get off the .world federation bubble (which blahaj is a part of).
Try Hexbear for a week. It doesn’t cost you anything, just take a look. You don’t have to stay if you don’t like it.
But something tells me you’re quickly going to understand why Lemmy has two major federation poles after checking it out.
How is this relevant to the conversation?
what a bizarre plug. "grieving? try going to a middle school classroom!" the internet is indeed a cold place, man...
Sorry I’m sure your nice people but I don’t want authoritarian propaganda spam
You think that covid has damaged their brain enough to turn them into a maoist? I doubt it.
I got COVID related tinnitus, avoiding beans, and certain soy based oils helps slightly, but it's not consistent.
I stay healthy by doing painful amounts of exercise each day even if it feels like it's killing me. It often feels like dying, and sometimes makes me very depressed (all my energy going into it, and being unable to think clearly after). But pushing my exercise limits every day, taking at most one day a week off for rest/recovery has helped.
I'm sorry for your loss of the lifestyle you cherished. Just a random thought: If hearing aids won't work for you, you could try feeling music instead of hearing it, while it won't be the same, sensing the underlying beat could help evoke your imagination again and possibly help you rediscover your favourite tunes and new ones.
Definitely the internet is a mixed bag, with lots of doom and gloom, and more cynical and controversial takes elevated to the top. There are also corners of the internet that are positive, definitely go visit them more. Reading fiction and learning from non-fiction literature may be more of a personal comfort than the internet may be.
Fucking sucks but it was impactful to read your story. I’m guessing you’re properly deep in the supplement community, but if you want to chat about them lmk
Nothing but feels for you friend, that's rough and I can't imagine what it must be like. I too am coming to grips with my own disabilities, a spine injury putting me into a wheelchair. Losing a sense on top of everything else you mentioned is horrific.
If I may be so bold, I found a lot of peace, zen and understanding in the book "What doesn't kill you". I recently finished and it was incredibly gratifying to read about how other people struggle with life changing medical events.
There are corners of the Internet still out there where you can find some really great people to hang out with; like 70% of my friend group is people who all meet through online games. We get together in person weekly or so now but still regularly play games together and hang out. I know it's no replacement for all you've lost, but maybe playing games with friends could be some comfort? Or some other hobby or interest group that can be engaged with online?
That's just rotten luck. You feel like your life has ended, and I can see why. But it hasn't. There's more strength in you than you know, even still.
If you have a favorite song, have you tried going to a lyrics site and imagining the song as you read? It's not as good as the real thing, but maybe it's a way to keep those songs alive in your heart.
I don’t know your circumstances, or what you’ve tried or can try, but you could look into cochlea implants.
And while nothing about this is ideal or easy, I hope you are able to find your way to heal and rebuild from this trauma. Grieve. You’ve lost a lot. But please don’t give up on yourself (or your wife) quite yet.
Cochlear implants don't fix brain damage.
Knowing anything about it I have to ask.... would bone conducting headphones work?
someone tells you major life altering loss and grief from two years ago, don't try to offer solutions to fix the problem.
So your solution is 'fuck trying to be helpful, they're finished, don't even bother'? As someone who is in a similar situation to OP, kindly eat shit and die. I will happily look into ways to regain my mobility, cognitive sharpness, and retrain my brain to overcome my loses, and I'm sure as fuck others would as well. It's fucking awful to be effectively chained to a bed or chair, forced to watch your life fade away, unable to do anything. I'm always up for trying new medical tech and therapy methods, and I go back to therapy every couple years to try again, and try new ideas.
To have your state of mind is awful for yourself, but is nothing short of disgusting, hurtful, and distressing for others. Truly, fuck you.
I would suspect they would not work. The damage from Covid appears to be neurological and bone conducting headphones only bypass the mechanical components of the ear.