Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 10 months ago

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Review of using a Hypershell X exoskeleton as a mobility Aid (programming.dev)

submitted 3 weeks ago by [email protected] to c/[email protected]

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cross-posted from: https://programming.dev/post/29601751

I have moderate to severe CFS/ME and I've been using a Hypershell X exoskeleton to help me get about. It's not a medical device but it's designed to help people walk/run/hike/cycle further than they could on their own. A price increase was announced for the 20th of May (https://hypershell.tech/en-uk/blogs/news/hypershell-price-adjustments-coming-may-20-2025) so I thought I'd try to raise awareness of this product for anyone that might want to get one before hand.

I previously used two walking sticks for short distances and an electric wheelchair for anything more. I wasn't completely happy with the wheelchair and wanted something in-between. I was a bit skeptical at first but the Hypershell X does seem to deliver just that. There's a bit of a learning curve and I certainly did overdo it a lot in the beginning. After a month of getting to know it I definitely feel like it helps. Since spring arrived I've been trying to get out into the sunshine and it helps a lot with getting back upstairs. I've also been walking along my road a little. While walking I use 50-100% Eco mode (its less powerful mode) and for climbing stairs I change it to 50-75% Hyper mode (the full power mode not available on the Go X model). It works similarly to the pedal-assist on e-bikes in that it first detects the motion you're making then assists with it.

The urge to do even more with it is strong but using it during activities that can already be managed should be safer and have a clear benefit. It can easily be used with other walking aids. Sitting while wearing it is usually fine as long as there's room.

I have a referral link for $30 off if anybody would like it: https://hypershelltechglob.refr.cc/referral30/u/willgroom?s=sp&t=cp .

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