Edit: I love this community so much, thank you all for trying to help!
The trick is to run on your toes
this post was submitted on 16 Mar 2025
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Chronic Illness
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Do cycling.
Probably not as good as walking/running...but the elliptical at a gym could really do the trick with very little knee pressure.
I ran a lot when I was younger; had to stop because of a knee injury, too. It never stops sucking but hopefully you can find something better on your knees that still helps you.
The fact that running reduced your symptoms is absolutely awesome, it's never been as effective for me. It's proof that you CAN beat this, that things can change. That is the ULTIMATE win. You've got this!
Holy shit. This is what’s wrong with me. I was working and taking 15,000 steps a day and now I’m staying home with the kids and getting no exercise other than the anxiety of running back and forth between them.
Same. I switched to skipping (jump rope) and haven't looked back.
*cries in ehlers-danlos*
I was standing up from the toilet one day and my knee pooped and it hurts randomly now
Did your knee poop out your kneecap?
Eww.
I have a fucked up knee too. some days i wish i could hack it off and strap a table leg to the stump.
I got into running when I was younger and messed up my foot lol. It's hard. I do yoga now.
I like walking more. I can listen to radio recordings / streams longer while doing it.
I told my rheumatologist, „don’t worry, my dog keeps me busy!”. My dog is now on biologic treatment for osteoarthritis while I’m waiting for mine for an autoimmune arthritis XD
Are they really fucked up or do they just hurt a bit? Slight pain is not necessarily a sign of permanent injury and will most likely go away with activity. Even if it is an injury, the best course of action is to keep moving the joint. Joints don't have active circulation and so they need the movement to heal.
https://www.barbellmedicine.com/blog/pain-in-training-what-do/
GP said it's almost certainly that the tendons are inflamed. He said this type of thing usually heals in about 2 weeks, but it's been two months. It's extra scary, since I've had tendonitis in my entire forearm for almost 5 years now and nothing has helped.
Thanks for the resource!
Have you tried slow high volume eccentric movements? 30+ reps, 8 second eccentric, very low weight.
I recommend jump rope if running tends to hurt your knees, ankles, or shins.
I can't do cycling either, and I have other issues that make swimming not possible.
When I was able to go, I had a great physical therapist. She had good advice on how to apply kinesio tape.
Can't do physio rn, insurance covers a set amount, which is usually enough, but since I live in an expensive city, there'd be a co pay I couldn't afford.
I'll look into kinesio tape! Maybe there's online resources that'd explain how to apply
I hope it helps! I had to stop going myself for other reasons so I get it.
Make sure to have some sort of oil on hand to remove the tape if you mess up. That stuff stays on for a while, like days.
That's so frustrating!!!
I'm in a similar boat, where my joints are really whiny and won't let me run nearly as hard as I'd want to. I found a lot of daily stretching and sleeping with a pillow between my legs helps a lot. Still, my knees or hips wake me up more frequently than I'd like.
Also some strength training can feel like a cardio workout and actually strengthens the muscles around your treacherous joints.
Sorry to jump into solutionising... This one just really cuts close to home.
No reason to be sorry!
Good point, I might just switch to calisthenics for a little while. And yeah, I do need to stretch more!
Is swimming an option?
Yes that's what I've been doing these past few weeks, but during today's laps, the knee pain worsened :(
That sucks!
FWIW I get knee pain when I don't stretch. I'm not saying that's what is happening with you, but maybe physio or stretching would help?
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