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Not Facebook but sure bud. (lemmy.world)

submitted 9 months ago by [email protected] to c/[email protected]

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[–] [email protected] 101 points 9 months ago (3 children)

I hate BS like this. And yes I’m biased because I got a double lung transplant. There are so many myths about organ donation. You basically have to have no brain activity and be stable.

[–] [email protected] 18 points 9 months ago

Well that person has no brain activity but they're also unstable so that's an issue

[–] [email protected] 2 points 9 months ago (1 children)

Holy shit, what led to that and how are you now?

[–] [email protected] 2 points 9 months ago (1 children)

Cystic fibrosis, it’s a genetic thing. The lungs have a harder time clearing mucus out and that eventually scars the lungs and reduces lung function.

When I was born they didn’t even know what caused it (DNA defect that has a 25% chance of being passed to a child when both parents are CF carriers) .

Now they have target medications to fix the genes that were damaged. It’s pretty amazing.

I’m over 15 years post transplant and am doing great.

[–] [email protected] 2 points 9 months ago

I'm really glad to hear it. Modern medicine is pretty wild when you think about it. Here's to your continued health! 🥂

[–] [email protected] 36 points 9 months ago (2 children)

That’s awesome. My niece passed away several years ago waiting on lungs to become available (CF). Everyone in the family is an organ donor now. If we’re not using them might as well give someone else a shot.

[–] [email protected] 3 points 9 months ago (1 children)

I was diagnosed CF at three months old. I made it into my 20’s before I was on oxygen full time and was listed for a transplant. I got my transplant over 15 years ago and I’m still doing awesome now.

So I try to thank donors in advance on behalf of the potential recipients of those life saving gifts.

[–] [email protected] 2 points 9 months ago

I don’t know you but hearing this makes me incredibly happy and I wish you a long life and all the joy it brings!

[–] [email protected] 7 points 9 months ago (2 children)

Exactly. Just leave my facial skin for the family, and take the rest if you can use it.

[–] [email protected] 2 points 9 months ago

Ewww, I don't think I want my grand aunt's facial on me. Let some other poor sap have it.

[–] [email protected] 20 points 9 months ago (1 children)

Fuck that. Take the facial skin too. I want my open casket funeral to be memorable.

[–] [email protected] 4 points 9 months ago* (last edited 9 months ago) (1 children)

That made me laugh! Good one Sir/Madam!

[–] [email protected] 2 points 9 months ago

And by open casket funeral I mean ditch down by the river that they find me in.