this post was submitted on 22 Aug 2024
0 points (NaN% liked)

Autism

6827 readers
1 users here now

A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.

We have created our own instance! Visit Autism Place the following community for more info.

Community:

Values

  • Acceptance
  • Openness
  • Understanding
  • Equality
  • Reciprocity
  • Mutuality
  • Love

Rules

  1. No abusive, derogatory, or offensive post/comments e.g: racism, sexism, religious hatred, homophobia, gatekeeping, trolling.
  2. Posts must be related to autism, off-topic discussions happen in the matrix chat.
  3. Your posts must include a text body. It doesn't have to be long, it just needs to be descriptive.
  4. Do not request donations.
  5. Be respectful in discussions.
  6. Do not post misinformation.
  7. Mark NSFW content accordingly.
  8. Do not promote Autism Speaks.
  9. General Lemmy World rules.

Encouraged

  1. Open acceptance of all autism levels as a respectable neurotype.
  2. Funny memes.
  3. Respectful venting.
  4. Describe posts of pictures/memes using text in the body for our visually impaired users.
  5. Welcoming and accepting attitudes.
  6. Questions regarding autism.
  7. Questions on confusing situations.
  8. Seeking and sharing support.
  9. Engagement in our community's values.
  10. Expressing a difference of opinion without directly insulting another user.
  11. Please report questionable posts and let the mods deal with it. Chat Room
  • We have a chat room! Want to engage in dialogue? Come join us at the community's Matrix Chat.

.

Helpful Resources

founded 1 year ago
MODERATORS
 

I'm the father of a 6 year old boy diagnosed with autism when he was 4. He's considered non verbal although he has some stock phrases and sounds he uses daily.

The thing is I'm worried if I've made the right decisions and I'm worried about his future.

Will he ever talk more? Will he do well in mainstream school? Will he be OK?

I'd be interested in hearing your experiences especially if you started as non verbal.

Did it get easier for you? When did you start talking more?

top 11 comments
sorted by: hot top controversial new old
[–] [email protected] 0 points 2 months ago (2 children)

It really depends on the individual. Some go from no -verbal to making a living off YouTube/TikTok, some never really speak a lot.

Thankfully verbal communication isn't the only way to communicate. 6 is a bit early for that but, if your child ends up preferring to talk over chat or emails, try to roll with it, that could be the key to having meaningful conversations with him.

Personally, I can talk just fine but I'd rather not. Coming up with responses in real time and listening in real time is demanding for me, because I also have ADHD and my mind wanders around a lot. But if you give me a bit of time I'll probably write you a detailed, thought out answer like I'm doing right now. I can't handle small talk but surprisingly my numerous work meetings go well because I know all the answers, I'm an expert in my field and the goto for tough questions at work.

The main thing to keep in mind is that being non-verbal in no way means he's dumb. He can turn out to be very smart but kind of "locked in" unable to talk about it much but will write a solid PhD thesis like it's easy. It can be very weird how things play out, and too often people assume intelligence is a singular thing. Verbal intelligence and abstract intelligence and mathematical intelligence aren't the same, and autistic people tend to score low in some areas and very high in others, although not universal obviously.

Just focus on being a great dad and not force him into being neurotypical. We call it "masking", which is consciously doing all the little things people do unconsciously and it's exhausting. If he's being weird at home, it doesn't hurt anybody. Don't force answers or any task for that matter. We can be sensitive, and forcing things to happen at specific times is just stressful and can result in a shutdown or tantrum while you could have just given me an hour or two to mentally prepare and do the thing.

I see things like "my child refuses to go outside but we found him happily playing in the yard today, what's going on?" and the answer to that is, he did on his own will, that's the difference. He had the bandwidth and will to experience a bit of outside at this particular moment.

[–] [email protected] 0 points 2 months ago

Thank you for a really thought out response, we are trying to avoid masking but know some aspects are inevitable.

[–] [email protected] 0 points 2 months ago (1 children)

Wow... as someone who is not neurospicy but is interested in those who are, this comment gave me a lot of insight into how your brain ticks. Thank you!

[–] [email protected] 0 points 2 months ago

neurospicy i like this word! 😀

(and i somehow do not dislike it that it takes me ages to choose a fitting emoji ... every 🤔 single 🙄 time 😅)

[–] [email protected] 0 points 2 months ago (1 children)

i was diagnosed recently (i'm middle aged) and i've since learned that people of the spectrum get along better with other people also on the spectrum.

when i learned both of this; it reminded of me of my childhood and how other children who existed on the non-communicative portions of the spectrum gravitated towards me despite me never trying to form a relationship with them. in all of these cases the parents of the child pushed school guardians and took action themselves to keep their children away from me and the only reason i ever heard was that they were afraid that their child was going to be hurt because i could never understand what it was like to live on the spectrum.

if you want your child to have friends and you can see that he gravitates towards another child who seems neuro-typical: encourage it through that child's parents. also: if they're anything like my parents; they would have been insulted at the suggestion that i was on the spectrum and banned me from ever associating with your child, so don't mention that that's the reason why you're doing it.

[–] [email protected] 0 points 2 months ago (1 children)

I think he wants friends but doesn't know how to make that initial engagement. Some children thankfully gravitate towards him so he is getting some social interaction, school holidays are rhe worst for us as parents tend to avoid us.

[–] [email protected] 0 points 2 months ago* (last edited 2 months ago)

school holidays are rhe worst for us as parents tend to avoid us.

i regret the way i behaved as a kid when i learned about the stigma attached to befriending the shortbus kids and the memories of doing it to people who are just like me are going to haunt me for the rest of my life; the people who aren't automatically bigoted like this are gods among people.

[–] [email protected] 0 points 2 months ago (1 children)

A public school should legally be required to provide specialists to any student with special needs. They are at least in my state. I would definitely get in touch with your school.

[–] [email protected] 0 points 2 months ago

He has 1:1 help at school

[–] [email protected] 0 points 2 months ago* (last edited 2 months ago) (1 children)

Take this advice with a grain of salt, but consider going to an SLT. Practically anything to do with late language acquisition is worthy of being looked at by an SLT. If the therapist is specially trained or schooled in it, it may show results with language acquisition and production. Plus a second opinion, other than from a psychotherapist, could prove helpful with finding strategies to manage your daily lives. Good luck!

[–] [email protected] 0 points 2 months ago* (last edited 2 months ago)

Thanks I'm going to look up some local SLT, we went through the local health care system at first for SLT which turned out to be a series of PowerPoint slides which honestly doesn't prepare you for anything.