this post was submitted on 01 Dec 2024
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[–] [email protected] 16 points 2 days ago (1 children)

I haven't found an article yet that can actually articulate the problem with 23 and me right now, and actually did research into it or even read the terms and service. The problem with 23 and me is that they are not maximizing the share holder value of the data they are sitting on. The CEO wants to keep the company in line with the principals they were founded on which is to protect the privacy and data of their customers, while using opt in studies to build data sets that can be studied or sold.

Investors want to enshittify the company, and have been organizing a campaign against to company to try to drive it into liquidation to buy the data, even though the company is profitable. I wouldn't be surprised is they are funding these weekly omfg 23 and me bad articles.

[–] [email protected] 4 points 1 day ago

That juicy data is going to get bought up by the health insurance industry. I would be surprised if they aren’t part of the push to force them to sell the data.

[–] [email protected] 2 points 2 days ago* (last edited 2 days ago)

I'm honestly not interested in 23andMe so I never bothered to fact-check so take this with a massive grain of salt but I did watch Linus (from TechTips, not Linux) rant about the privacy problems it has. I don't trust him about these things but I've also watched him rant in favor of letting the ~~spyware~~ consumer features of Windows stay on because they're so great and it's not that big of a deal, so 23andMe has to be doing something very, very wrong.

[–] [email protected] 4 points 2 days ago (1 children)

On this topic, I did ancestrydna long before I got concerned with my data and privacy. I have since deleted my data and had them destroy my physical sample as well (which took them a long time). But I wonder if the damage is done and even though they say they deleted and destroyed the sample how can I know for sure? Etc

[–] [email protected] 7 points 2 days ago (1 children)

I don't know James Smith, from Phoenix, Arizona. Social security number 523-098-1322. Is your data safe?

Imagine how you'd freak out if I, by change, got it right.

[–] [email protected] 7 points 2 days ago

What the hell?! You got mine right!

Not really, but it would have been cool. Also, socials are 9 digits in the US.

[–] [email protected] 59 points 2 days ago* (last edited 2 days ago)

I am a technology journalist – I like to think I am thoughtful about what data I share with corporations.

My brother in Christ, if you are a tech journalist then you, out of all people, should know not to give ANY data to corporations. That is a massive fuckup regarding your job.

[–] [email protected] 20 points 2 days ago (1 children)

Recreational DNA testing eventually led to discovering that I had never before met my biological father. Mom got it wrong. I met him and his family this summer finally. I am slightly irritated that my last name (and my child’s) is now kind of meaningless, and it’s too much of a hassle to change it.

[–] [email protected] 2 points 2 days ago (2 children)

Paternity testing should be done for every child. The child and father should have the same certainty that mothers have.

[–] [email protected] 1 points 2 days ago* (last edited 2 days ago)

Completely agree.

I mean there so many videos like this https://youtube.com/shorts/FgzbCJYCBr8 that dude is devastated. Or this 'classic' https://youtube.com/shorts/qj0zsL68Ka8 or this or guy https://youtube.com/shorts/j3PWef89kPw

I could keep going, it's not that hard videos like that's and I wish it was.

Just for a pallet cleanser, look how happy this do is to find out that he is the father. https://youtube.com/shorts/PfRR5iKE70Q

[–] [email protected] 8 points 2 days ago (1 children)

Even with my experience as a presumed father, and as a falsely-surnamed child, I disagree.

[–] [email protected] 1 points 2 days ago (1 children)

It's okay to disagree. But many who would line to know can object only when it's already too late.

[–] [email protected] 2 points 2 days ago (1 children)

The only thing I can imagine working is for a birth certificate when listing father, would have a selection of “presumed” or “verified”, where verified would have a doctor sign off. It should be optional. But it would be nice if a paternity test was presented as an option automatically, without needing suspicion or accusation.

[–] [email protected] 6 points 2 days ago (1 children)

That default to suspicion/accusation is why fathers don't have real rights in this matter.

[–] [email protected] 1 points 1 day ago

As it only requires saliva, any father can test their child’s DNA. Babies drool a lot. It may cost a few hundred dollars to do so. I suppose that makes it even less trusting to do it in secret than just having it as standard medical procedure.

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