this post was submitted on 26 May 2024
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Not all handicaps are visible. I know someone, quite young (mid-30s) and very healthy-looking. But she has a bad tension: if she stays standing for too long, it's very uncomfortable and she may even faint. Older people feel entitled to take her seat and don't understand when she refuse.
Shit, I've been this person since I was a teen. My BP drops like a rock in the heat, if I'm out in the summertime, I really can't stand in place for more than a couple of minutes.
Generally it isn't an issue because there's enough seats to go around (and I don't live somewhere with public transit), but I've had one or two less than pleasant conversations when on vacation.
I’ve never heard it called “bad tension” but I have POTS (postural orthostatic tachycardia syndrome) which fits your symptoms. I can’t maintain my blood pressure when I stand still (or if I get too hot, bend down, lift my arms over my head, eat a big meal…) my heart rate skyrockets to try to compensate and I ultimately faint.
I was diagnosed in 2012 and they’re still tweaking my medication to try and get it right. For most people it starts in their teenage years and they “outgrow” it within 5 years. For me it’s second to moderately severe Ehlers Danlos Syndrome, there’s no outgrowing it. I can’t go anywhere that requires more than a short walk from the car to a seat - queues are literally my enemy - so I use a wheelchair. The amount of dirty looks I get when I get out of my wheelchair to move to a more comfortable seat, or to go to the toilet etc are awful! Not only are a lot of disabilities invisible but not everyone who uses a wheelchair can’t walk at all. Grrrr!
Yeah, that's it. I was diagnosed when it was still a very recently discovered condition (well...It still kind of is...). As a result, I have some secondary effects from "novel" treatments my parents tried.