this post was submitted on 18 Apr 2024
1 points (100.0% liked)

Autism

6868 readers
1 users here now

A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.

We have created our own instance! Visit Autism Place the following community for more info.

Community:

Values

  • Acceptance
  • Openness
  • Understanding
  • Equality
  • Reciprocity
  • Mutuality
  • Love

Rules

  1. No abusive, derogatory, or offensive post/comments e.g: racism, sexism, religious hatred, homophobia, gatekeeping, trolling.
  2. Posts must be related to autism, off-topic discussions happen in the matrix chat.
  3. Your posts must include a text body. It doesn't have to be long, it just needs to be descriptive.
  4. Do not request donations.
  5. Be respectful in discussions.
  6. Do not post misinformation.
  7. Mark NSFW content accordingly.
  8. Do not promote Autism Speaks.
  9. General Lemmy World rules.

Encouraged

  1. Open acceptance of all autism levels as a respectable neurotype.
  2. Funny memes.
  3. Respectful venting.
  4. Describe posts of pictures/memes using text in the body for our visually impaired users.
  5. Welcoming and accepting attitudes.
  6. Questions regarding autism.
  7. Questions on confusing situations.
  8. Seeking and sharing support.
  9. Engagement in our community's values.
  10. Expressing a difference of opinion without directly insulting another user.
  11. Please report questionable posts and let the mods deal with it. Chat Room
  • We have a chat room! Want to engage in dialogue? Come join us at the community's Matrix Chat.

.

Helpful Resources

founded 1 year ago
MODERATORS
[email protected]
1
Frontiers | Increased risk of acute stress disorder and post-traumatic stress disorder in children and adolescents with autism spectrum disorder: a nation-wide cohort study in Taiwan (www.frontiersin.org)
submitted 7 months ago* (last edited 7 months ago) by [email protected] to c/[email protected]
12 comments fedilink hide all child comments
 

I expect this to be common knowledge for much of the audience here, but

TLDR: Science has[is starting to] confirmed. Autistic people are a [comparatively] traumatized group.

Journal article is from January of this year.

Introduction: Children and adolescents with autism spectrum disorder (ASD) may be particularly vulnerable to the impact of traumatic events, yet the association between ASD and the risk of developing acute stress disorder and post-traumatic stress disorder (PTSD) remains uncertain. This study aims to investigate this association, addressing the gap in large-scale evidence on the subject.

Methods: Conducted as a retrospective and matched cohort study, data was sourced from the National Health Insurance Research Database (NHIRD) in Taiwan, spanning from January 1, 2000, to December 31, 2015. The study included patients aged 18 years or under newly diagnosed with ASD (n=15,200) and compared them with a matched control group (n=45,600). The Cox proportional regression model was employed to assess the risk of acute stress disorder and PTSD.

Results: Over the 15-year follow-up period, a total of 132 participants developed either acute stress disorder or PTSD. Among them, 105 cases (0.691% or 64.90 per 100,000 person-years) were in the ASD group, while 27 cases (0.059% or 5.38 per 100,000 person-years) were in the control group. The adjusted hazard ratio for the ASD group was significantly higher compared to the control group (25.661 with 95% CI = 15.913-41.232; P < .001).

Discussion: This study provides compelling evidence that individuals with ASD face an elevated risk of developing acute stress disorder and PTSD. The findings underscore the importance of clinicians recognizing and addressing this vulnerability in ASD individuals exposed to traumatic events. This emphasizes the need for heightened attention to the risk of PTSD and acute stress disorder in the ASD population.

you are viewing a single comment's thread
view the rest of the comments
[–] [email protected] 0 points 7 months ago (1 children)

This kind of research really ticks me off, not because, like you say, it's obvious and they could have found out the results by asking any autistic person, I understand the need to provide some evidence or whatever, my issue is the conclusion is always that there's something wrong with us, and that we need to be fixed or "paid heightened attention to", when we're not the problem - ableist society that excludes and/or abuses us is, and until "heightened attention" is paid to them, nothing will ever improve for us, which just goes to prove the research was never intended to understand us or improve our lives.

[–] [email protected] 0 points 7 months ago (3 children)

"People who are discriminated against have more stress and PTSD. This probably is because they are more sensitive."

Sigh.

[–] [email protected] 0 points 7 months ago (1 children)

This probably is because they are more sensitive.

I didn't read the entire article because I'm about to head out, but I searched the article for that statement and couldn't find it. If they did say something similar or implied that the reason we are traumatized is our fault for being sensitive, then maybe someone can send this article on being told, "You're too sensitive," to the authors.

Btw, I seriously told some friends earlier this week that I want a shirt that says, "I'm too sensitive," or some variation of that. Another idea was, "'You're too sensitive!' - Abusers."

[–] [email protected] 0 points 7 months ago

It's not a verbatim quote. It's sardonic, derived from the introduction.

I do not like being called "particularly vulnerable to the impact of traumatic events," ha. Even if they are utilizing that phrasing primarily for kids and young adults, and hedge it in tentativeness, it genuinely is not a dissimilar wordage to people who had been abusive to me during those periods of my life.

I wasn't particularly vulnerable to the impact, I was in a crap situation trapped with people who deeply did not understand me, that had complete power over me. That would be bad for anyone.

It's not a critique of the article as a whole. More of a pet peeve on how many people frame approaching autism, even without any malignant intention. I don't hold any ill will against the researchers, I'm just tired.

==

I agree with the conclusion of your shared article that people have a tendency to frame perceptiveness as "too sensitive," twisting a genuine strength into a bad thing to undermine your own critical thinking.

I also want to state somehow that I appreciate the pure good faith way you approached my original comment ha, keep doing what you're doing.

[–] [email protected] 0 points 7 months ago

Every, fucking, time.. 🤦‍♀️

[–] [email protected] 0 points 7 months ago (1 children)

It does say "may be" they're not putting down hard conclusions yet

[–] [email protected] 0 points 7 months ago (1 children)

And I said "probably." I didn't misrepresent them.

If it is the first go-to speculation, it is fairly representative of the default of what they assume could be valid, and it's annoying. That the automatic primary speculation is that minorities are "just sensitive" should be challenged. Tentative couching of that prognosis does not excuse them from review.

I realize you did not state this as your position, and I do not expect you to defend it as your own, but I'd very much prefer to stave off any implication.

[–] [email protected] 0 points 7 months ago (1 children)

The article is written as if the author is looking for a particular answer. It is unfortunate. I am autistic too, thank you for staying critical on this stuff!

[–] [email protected] 0 points 7 months ago

keep on truckin' yourself. ^^